The Decision Support Tool assessment: what to expect
9 min read · Written by the Future You CHC team
The Decision Support Tool (DST) is the full CHC assessment. A multidisciplinary team scores 12 care domains and then makes a recommendation on whether the person has a primary health need. It is the stage where preparation matters most.
The 12 care domains
Each domain is scored from no needs up to priority or severe, depending on the domain. Scores are evidence, not arithmetic — the recommendation must consider the whole picture.
England and Wales each use their own Decision Support Tool. The domain set and the four key indicators are essentially the same, so preparation that works in one country works in the other.
- Behaviour; Cognition; Psychological and emotional needs
- Communication; Mobility; Nutrition
- Continence; Skin integrity; Breathing
- Drug therapies and symptom control; Altered states of consciousness; Other significant needs
The four key indicators
The decision turns on nature, intensity, complexity and unpredictability. In plain terms: what kind of needs are they, how much support do they require, how do the needs interact, and how likely is it that things change without warning?
Unpredictability is frequently under-recorded. Evidence of unplanned interventions, deterioration, refusals and emergency calls is often what shifts a domain score.
Your role in the meeting
You are entitled to be involved, to see the draft DST, and to have your comments recorded — including where you disagree with a domain score. Ask for the evidence behind each score to be stated, and for your evidence to be attached to the document.
- Ask for the meeting date with enough notice to prepare
- Ask for a copy of the draft DST before or at the meeting
- Ask that disagreements are recorded in the document, not just noted verbally
- Bring a second person to take notes
After the assessment
The MDT makes a recommendation; the ICB (England) or Local Health Board (Wales) makes the decision — in England normally within 28 days of the Checklist. You should receive the decision in writing with reasons and a copy of the completed DST. If the outcome is not eligible, the letter should explain how to request a review.
Still have questions about your own situation?
Guides explain the process; every situation is different. Our independent support, delivered by an experienced Mental Health Nurse, can help you understand where you are, prepare relevant information and think through your next steps. It doesn't guarantee an outcome, and not every family needs paid support.
Official guidance: the National Framework (England) and the Continuing NHS Healthcare Framework (Wales).
This guide is general information about the NHS Continuing Healthcare process in England and Wales. It is not legal advice and does not replace an individual assessment of your circumstances.